Louisiana Birth Defects Monitoring Network

The Louisiana Birth Defects Monitoring Network (LBDMN)  was formed to track birth defects in Louisiana children. The goals of the program are:

  • to find birth defects in children under age 3
  • to give information about available support services to families of children with a birth defect
  • to teach others about birth defects
  • to help prevent birth defects in the future

What is a birth defect?

Birth defects are more common than you may think. Every year in the US, about 1 in every 33 babies is born with a birth defect. A birth defect is a problem that happens when the baby is still growing inside its mother’s body. There are many reasons for why this happens. It’s important to talk to your doctor about what to expect if your baby is diagnosed with a birth defect. Some birth defects are very minor or harmless. Other birth defects can be serious and can require long-term medical care. Birth defects can affect the way the body looks, works, or sometimes both. Children with birth defects may have special health care needs beyond those of other children. They may require special treatment such as surgery or therapy. Sometimes their conditions can last their whole lives. Fortunately, many children with birth defects go on to live quality lives.

Where can I find more information about support services?

We’ve created a Family Resource Hub on our homepage to give you a source of information about programs and services for children and youth with special health care needs (CYSHCN). It contains basic descriptions of services provided, information on eligibility criteria, contact information, and web addresses. It also has helpful tips and tools regarding your family member’s care. We hope that it will serve as a starting place for you to receive the services your family needs for daily life.

To visit our Family Resource Hub, please visit http://ldh.louisiana.gov/index.cfm/page/1550

Louisiana Birth Defects Monitoring Network ›
Our home page with the Louisiana Department of Health

Children's Special Health Services ›
Our partner program ensuring all CYSHCN in Louisiana have access to healthcare services

Genetics Program ›
Our partner program providing services to individuals and families who have or are at risk for genetic disorders

Julie Johnston, MPH
Program Manager
Central Office: (225) 342-2017
Fax: (504) 568-7529